January 27th, 2010
Hi everyone , i wanted to let everyone know what meds i’m on as it may differ from what other sufferers are on.
- Prednisolone (2.5 mg tablets) x 3 per day
- Lazaprazole (15 mg tablet) x 1 per day
- Calcichew (2 tablets per day)
I have been on higher doses of prednisolone but as my breathing has levelled out over the months/years they have slowly reduced the doseges, i guess to get to a minimum. They do not like to have you on steroids for long periods of time. Which is why they wanted to put me on azathioprine
, which had implacations for child production.
Posted in Medication | No Comments »
January 7th, 2010
Hi there everyone again.
I suffer from severe cracked dry hands with my raynauds, I have found that over the festive gap I used a cream my doctor gave me (i will post the name later) to first cream my hands then put the cream in the fingers of rubber latex gloves and wear them for a good couple of hours in the evening. This allows me to get on with stuff and the cream doesnt come off my hands. I did this every night for about a week and it appears to work very well. I did them run out of gloves and it quickly went back to cracked again. I now have bought some more and I will continue this, and post my further results here.
Keep well all…
Tags: cracked dry hands, raynauds
Posted in NSIP Treatment | 1 Comment »
May 26th, 2009
As this is the first post in this section I can only go by my symptoms which I have collected over time.
Initially I was very short on breath doing the most mundane things, I didnt really notice this too much because I was on the computer most of the time (like now!) and didnt really do any exercise to speak of.
I was also overweight which didnt help, overtime I developed a tightness of my chest area and other symptoms which is beleived to be directly related to connective tissue disorder for example, Raynaud’s, Dry eyes, Rash’s of varing verocity.
Tags: dry eyes, hard to breath, rash, raynauds, symptoms, tightness
Posted in NSIP Symptoms | 5 Comments »
May 21st, 2009
I was first diagnosed with Cryptogenic Organising Pneumonia or (COP) more than 6 years ago now, I was treated initially with two asthma type pumps, as my symptoms were very short of breath and I was over weight, I was nearly 20 Stone in weight (UK measurement). As you may have guessed I am from England….
I took the pumps and i was told that I should use one twice a day, once in the morning and one in the evening, and the other everytime that I felt short of breath.
The problem was I used it everytime I went up the stairs as I felt I needed it. I was using it so much that I was gettig light headed and I knew something was wrong. Which it was as I was not supposed to be using it that much. I then went back to my local GP and he referred me to a specialist.
Upon meeting him he performed various lung function tests and diagnosed me with COP (Cryptogenic Organising Pneumonia) only after a few visits. With this in mind he decided to treat it with a short high course of steroids and two other drugs to counteract the effects of the steroids.
- Lanzaprazole (Protects the stumach lining)
- Calcichew (Protects the bones from leeching calcium)
The course of steroids was 60mg per day which was 12 x 5 prednisolone a day plus the counteracting drugs. All for one week. To be honest I felt great. I had never felt that I had so much energy as I was striding down the road to a from work.
Tags: calcichew, COP, lanzaprazole, My Story, nsip, pnuemonia, prednisolone, shortness of breath, tired
Posted in My Story | 2 Comments »
